Sickle Cell Screening
Part of Maternal & Newborn Health
At Preterm Infants Parents Network Uganda (PIPNU), we address sickle cell disease (SCD), a major public health challenge in Uganda. Preterm and low-birth-weight infants are especially at risk of severe complications and early mortality. Early screening, parent education, and timely care can prevent illness and save lives.
Understanding Sickle Cell Disease
SCD is an inherited blood disorder causing red blood cells to become rigid and crescent-shaped, which can block blood flow and break down prematurely. Complications include:
- Severe pain episodes
- Chronic anemia
- Increased infections
- Organ damage
- Stroke
PIPNU's Sickle Cell Screening Program
We integrate screening into maternal, newborn, and child health pathways to ensure early detection and continuous care.
Program Highlights:
- Newborn Screening: Heel-prick tests at birth, linked to health records for follow-up.
- Community Screening: Mobile camps and Village Kangaroo Ambassadors reach infants missed at facilities.
- Parent Education & Counseling: Guidance on inheritance, infection prevention, nutrition, crisis management, and long-term care.
- Linkage to Treatment: Referral to clinics, access to antibiotics, vaccinations, pain management, and ongoing monitoring.
- Genetic Counseling: Support for families on carrier status and future pregnancy planning.
Impact:
- Early SCD detection among vulnerable infants
- Reduced infection- and anemia-related mortality
- Stronger caregiver knowledge and referral networks
Key Messages:
- SCD is manageable with early, consistent care
- All infants, especially preterm or low-birth-weight, should be screened
- Vaccinations and preventive care save lives